What do you do when your body betrays you? It happens to all of us at one point. It might be something minor, but embarrassing like tripping in front of a room of people after your leg falls asleep, or it might happen as you grow older, your eyesight worsens or your blood pressure rises. But what do you do when your body betrays you in considerable ways at a young age? I have been trying to figure this out for the past few years, and I’ve found some answers, as imperfect as they are.
I have been experiencing chronic illness/pain for over five years and an eating disorder for about twelve years. I don’t have a clear diagnosis for my chronic pain, but right now I do know that it affects every aspect of my life. I have days where I can’t get out of bed or where I double over in pain, I have days where my body just seems to stop working. I don’t want this post to be me complaining about being chronically ill, but just to set the scene; I will say that my body often does not act in the way I would like it to. I was a pretty healthy kid/young person, besides the occasional cold, I was never sick. Even for the first few years of my ED, physically I was “ok”. Of course, my body (and mind) was being severely damaged; I just didn’t realize it yet. When I first started to experience chronic pain, it was something I could push through, but as the years went on, I had more trouble dealing with it. I am very blessed to have lots of people, professionals and loved ones, to support me. However, most of the time it’s just me dealing with my health problems.
On the bright side, I have found a few things that help: reality shows that are too embarrassing to list but great for distraction, breathing exercises (everyone hates it when professionals suggest this, but they work) and probably the most beneficial, making sure I really embrace every single moment I don’t feel like shit. I try appreciate everything my body can do. I may hate my body 99% of the time, but I am also fascinated by it. A friend of mine recently invited me to yoga, and I’m amazed, that after all the terrible things I have done to myself, and regardless of how much pain I am, my body can do amazing things.
I was a little frustrated leaving yoga class today. I felt ill and off balanced, but with some assistance from the teacher and modifying poses, I completed an hour-long class. This may not seem like a big deal to most people, but each day I can get up and go to work, or have a conversation or go for a walk, it’s an accomplishment. Every day will not be a good day, and that is ok.
Another very important lesson I have learned from being ill is that it is ok to have shitty days. Whether it’s a bad day due to a physical or mental illness or you are just feeling “off”, it’s ok to have a rough day. I have learned that sometimes I should not try to push through, I have found that stopping and just sitting with whatever I am feeling can be the best solution. Yes, it is not fun to explain why I can’t do something or have to sit something out, but it helps me survive.
Maybe I will never know what is wrong with me. Maybe I will find some treatment that will help me get rid of the chronic pain. Maybe I will recover or maybe I won’t, but at least I know I can survive a bad day.
Being young and chronically ill has taught me a lot, I wouldn’t wish this on anyone, but I often wonder how different of a person I would be if I didn’t have these illnesses. My GPA would be higher and I probably would have been overseas by this point. I like to think being ill has made me more self-aware, more compassionate and less selfish. I like to think that all of this has a deeper meaning. I know I appreciate my life more, little things bother me less and I am more driven to embrace all the seemingly inconsequential things in life. I don’t claim to have any special understanding, I still get frustrated and sad. I just know that I – my body and mind – can accomplish more than I thought I could, even if it takes me twice as long. The hardest things to learn is there is no time limit on healing or growing. I am still working to accept this, but at least I have time.